Leeds mum’s charity night ride for hospice which helped her poorly baby daughter

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Leeds mum Nacressa Swan took her newborn baby into work so that her friends at the office could share in the joy.

But happiness soon turned to heartbreak when doctors found out that the little tot had a genetic condition that would end her life prematurely.

Now her colleagues have found a way to support a local charity that has been a lifeline to Nacressa and hundreds of other families in Yorkshire in a similar position.

On July 18, staff from television company True North will each ride 120 miles through the night to raise money for Yorkshire children’s hospice Martin House.

Nacressa’s colleagues were inspired to take up the fundraising challenge after Nacressa described how the hospice had become a vital source of support for her and her family.

So far, True North have raised over £2,000, with every penny going directly to Martin House Children’s Hospice, in Boston Spa near Wetherby. But the team is determined to raise at least double that with their marathon ride.

Nacressa, from Armley, and her family began using Martin House Children’s Hospice after their baby daughter Amaia was found at 11 months old to have an incurable genetic condition.

Before that, the family had noticed Amaia, who is now two and a half, struggling with feeding and epilepsy.

The family stays at the hospice several times throughout the year to enjoy some respite whilst the hospice helps with Amaia’s medical needs.

Nacressa says: “The hospice is completely different to what I expected and can be like going on holiday. The children who use it enjoy a whole range of great activities, including music and art whilst the parents get to meet other parents in similar situations and enjoy some chill out time.

And speaking of her preparations for next week’s bike ride, she said: “Juggling the training with a toddler and a job has been tricky. I’m just aiming to finish!”