Leeds campaigner welcomes epilespy app

Jack Megson.
Jack Megson.
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A teenage campaigner whose aunt died from epilepsy has backed a new safety app for people with the condition.

Jack Megson, from Gildersome, welcomed the launch of The Epilepsy Self Monitor (EpSMon) which is designed to help adults who experience seizures manage their risk.

The 15-year-old – who was one of 23 finalists of the Red Cross Humanitarian Citizen Award in October 2013 – has been working with app creator SUDEP Action to raise awareness of epilepsy risks since 2006 after his aunt Helen died from epilepsy.

He said: “I am happy this new app is now available to help people with epilepsy. I hope they can use it to look after themselves and manage their condition better. It is vital that people who have the condition have as much access as possible to information to help them be aware of the risks and to help them keep safe whilst getting on with their day to day living.”

The EpSMon app will help people understand their condition better by suggesting a quick three-monthly test to assess their status and by highlighting risks and coming up with ways to lower them.

Jane Hanna, SUDEP Action chief executive, said: “We are very grateful for all the amazing work Jack has done raising awareness of risk in epilepsy and of EpSMon.

“People may only see a doctor once a year for their epilepsy – this safety app is designed to help them manage their risk the rest of the time. EpSMon will make people aware of why and when a medical review of their epilepsy is important. It will flag up whether help should be sought earlier than planned because risks have worsened.”

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