A Leeds woman is taking part in a mammoth road race to raise awareness of the serious condition her nephew is facing.
Julia Llewellyn from Guiseley, Leeds, will be running 100km from London to Brighton to raise awareness about gastroparesis and intestinal failure – a rare and devastating condition which her nephew, two-year-old Dylan, is suffering from.
Having suffered severe reflux as a baby, Dylan had to be tube-fed, and after a series of complications, operations and frequent lengthy stays at Leeds General Infirmary, he now has severe gastroparesis – paralysis of the stomach – meaning that he is unable to eat.
The tot needs to be fed directly into his bowel for 20 hours a day.
Dylan’s life is severely restricted due to being attached to a feeding tube and pump, which he has to pull around behind him wherever he goes.
Julia said: “Despite undergoing frequent painful procedures and often being very unwell, Dylan is the most incredible, resilient and smiley little character you can imagine.
“I am so proud to have him as my nephew.”
By running 100km, Julia hopes to raise awareness of this unusual condition, but at the same time, raise money for GIFTuk, a charity who provide support and resources for families, like Dylan’s, who are living with gastroparesis and intestinal failure.
The future is uncertain for Dylan at the moment.
However, his family still remain hopeful that there is something better around the corner and are grateful to the team at Leeds Children’s Hospital for the care and support they provide.
For more information and to donate visit Julia’s fundraising page www.everyclick.com/runningfordylan