DCSIMG

Leeds mum’s tribute to tragic daughter, 2

Aimee Frankland.

Aimee Frankland.

A family have told of their heartbreak after their “always smiling” little girl died from a rare form of epilepsy.

Two-year-old Aimee Frankland passed away in her parents’ arms in a Leeds hospital after suffering two prolonged seizures.

The youngster had lived with multiple seizures and serious health problems linked to them since she was a baby.

Despite that, her parents Karen and John said their “supernova” was always full of fun and happiness.

Karen, from Calverley, said: “She was a bundle of energy.

“She was full of smiles and unconditional love.

“She never moaned about anything. She just bounced back and got on with it.

“She just loved life. She was absolutely fearless.”

Now they want to raise money for research into Dravet syndrome, the condition Aimee suffered from.

“They call it a catastrophic condition, and it really is,” her mum added.

“We have lost such a beautiful little life. You just think that it cannot be all for nothing.”

Aimee was three months old when she suffered her first prolonged seizure and over time the attacks increased.

She also suffered from myoclonic seizures, short jerks or drop attacks which affected her every day and often left her with bumps and grazes. She usually wore a special helmet to protect her from serious injury.

Last year, Aimee was diagnosed by medics at Great Ormond Street Hospital with Dravet Syndrome, which affects up to one in 40,000 people.

Her seizures intensified and she was also diagnosed with pattern sensitivity, which mean that she was surrounded by triggers for her epilepsy.

“It was a real struggle for her,” Karen, 35, said.

On December 5 last year Aimee suffered a major seizure which left her in intensive care in Leeds General Infirmary.

The next day she suffered a further attack, which affected her brain and tragically, she was unable to recover.

She died on December 9, surrounded by her family.

Now her parents, who also have a four-year-old son William, want to raise money for the charity Dravet Syndrome UK in her memory.

Karen said: “We want to try and find a cure for it. It’s a heartbreaking thing for families to live with to lose such a beautiful little soul.

“It is a life-threatening thing, you do know that, but I didn’t think it would take her.”

* To donate to Dravet Syndrome UK, visit www.justgiving.com/AimeeFrankland or text AMFR73 £(amount) to 70070.

DRAVET SYNDROME

Dravet syndrome is characterised by hard-to-control seizures.

Children with the condition have a higher risk of sudden unexplained death in epilepsy, with 85 per cent surviving to adulthood.

Aimee’s mum Karen said: “It is a life-threatening thing, you do know that, but I didn’t think it would take her.”

* To donate to Dravet Syndrome UK, visit www.justgiving.com/AimeeFrankland or text AMFR73 £(amount) to 70070.

 

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