A FORMER Leeds bus driver who was struck with a little-known form of dementia aged just 45 has been dealt another devastating blow.
Doctors now believe Brian Schofield also has motor neurone disease, which is linked to the Frontotemporal Dementia (FTD) he has already been diagnosed with.
His wife Beverley told the YEP: “This is a devastating blow to us as a family.”
Now a group of friends has started fundraising to enable the couple, from Belle Isle, to go on holiday while her husband is still well enough and able to enjoy the experience.
Brian was diagnosed with FTD aged just 45.
The diagnosis came not long after he was named best bus driver in the country by transport firm First.
Mrs Schofield described the effect of the illness as taking a loved one away “a piece at a time”.
It typically strikes people in their 50s, but can start much earlier, leaving families to cope with upsetting symptoms like inappropriate behaviour, lack of inhibitions, compulsive rituals and language difficulties.
To date there is no treatment.
Mr Schofield, who retired through his ill-health, has had support from a team who help him enjoy activities like snooker.
But he has been suffering various symptoms which specialists in Manchester now think are motor neurone disease, which attacks the brain and spinal cord.
The disease can affect walking, talking, eating, drinking and breathing and there is currently no cure.
Mrs Schofield said her husband had no real insight into the disease, but had good support and adaptations were being made to their house.
Now their friend Sean Sissons has arranged a fundraising event to allow the couple to go abroad for a holiday before his health deteriorates more.
On August 10, there will be a race night at the Omnibus pub in Belle Isle, followed by live music and a raffle.
Supporters will also do a 10k charity walk on the day to boost coffers further.
Mrs Schofield added: “Belle Isle is a great community and people are very supportive.”
The race night starts from 7pm.