nine-month-old Isaac Barrass could need a liver transplant when he is older.
The tot was diagnosed with an incurable rare liver disease –but his family will not know the condition’s lasting effects until Isaac grows up.
He was diagnosed with a condition known as alpha one anti-trypsin deficiency.
In the most severe cases patients could need a lifesaving transplant but in other cases youngsters can grow out of the condition.
Doting mum Kayleigh, 26, of East End Park, Leeds, does not know what the future will hold for her son and faces an excruciating wait to see how the condition develops.
She said: “There is no cure and when Isaac gets older he could find he no longer needs treatment or he could need a transplant.
“It’s a waiting game to see how his liver will cope with the deficiency.
“It’s just something that we have got no choice other than to deal with it.”
Kayleigh is aiming to raise hundreds of pounds for the Children’s Liver Disease Foundation which has offered her support since Isaac’s diagnosis.
She has roped in help from Leeds Rhinos to host a fundraising evening tonight (SAT) at The Hope Inn.
Youngsters will be able to meet the rugby league club’s mascot Ronnie the Rhino and two players will sign autographs for a small donation to charity.
There will be an auction of musical and sporting memorabilia including a signed shirt from Leeds United players and a cricket bat signed by Darren Gough.
Kayleigh added: “While Isaac is in a good condition and everything is going well I wanted to take the opportunity while I can to do something.
“The support and advice has been amazing and this is a way of giving back.”
Alison Taylor, chief executive of Children’s Liver Disease Foundation, said: “Each day in the UK two more children are diagnosed with liver disease.
“CLDF takes action against it by providing information and emotional support, funds for research and a voice for all those affected.
“In order to do this, however, we rely on community fundraising for the majority of our income so we are delighted that Kayleigh is planning this event for us and it’s wonderful to see that she has already got great support from their local community.”
The fun fundraising event tonight is free to attend and open to all and begins at 7pm.